dc.contributor.author | Staats, Katrine | |
dc.contributor.author | Grov, Ellen Karine | |
dc.contributor.author | Husebø, Bettina | |
dc.contributor.author | Tranvåg, Oscar | |
dc.date.accessioned | 2020-03-13T08:21:24Z | |
dc.date.available | 2020-03-13T08:21:24Z | |
dc.date.created | 2019-12-18T15:24:32Z | |
dc.date.issued | 2019 | |
dc.identifier.citation | Staats, K., Grov, E. K., Husebø, B. & Tranvåg, O. (2019). Framework for Patient and Informal Caregiver Participation in Research (PAICPAIR). Advances in Nursing Science. | en_US |
dc.identifier.issn | 0161-9268 | |
dc.identifier.uri | https://hdl.handle.net/11250/2646651 | |
dc.description.abstract | The term user involvement is frequently applied in research. Frameworks for patient and informal caregiver participation as coresearchers in studies concerning patients with life-threatening illness are however sparse. The PhD project Dying With Dignity—Dignity-Preserving Care for Older Women Living at Home With Incurable Cancer has implemented a thorough cooperation with patients and informal caregivers from the early stages of the research process. A framework for Patient and Informal Caregiver Participation In Research (PAICPAIR) is suggested—creating a stronger foundation for democracy, equality, and research quality by also promoting active participation among vulnerable people experiencing incurable, life-threatening illness, as coresearchers. | en_US |
dc.language.iso | eng | en_US |
dc.publisher | Wolters Kluwer Health | en_US |
dc.rights | Navngivelse 4.0 Internasjonal | * |
dc.rights.uri | http://creativecommons.org/licenses/by/4.0/deed.no | * |
dc.subject | home health care | en_US |
dc.subject | human dignity | en_US |
dc.subject | palliative care | en_US |
dc.subject | practice guidelines | en_US |
dc.subject | research | en_US |
dc.subject | research ethics | en_US |
dc.subject | user involvement | en_US |
dc.title | Framework for Patient and Informal Caregiver Participation in Research (PAICPAIR): Part 1 | en_US |
dc.type | Peer reviewed | en_US |
dc.type | Journal article | en_US |
dc.description.version | publishedVersion | en_US |
dc.rights.holder | Copyright © 2019 The Authors. | en_US |
dc.source.pagenumber | 13 | en_US |
dc.source.journal | Advances in Nursing Science | en_US |
dc.identifier.doi | 10.1097/ANS.0000000000000289 | |
dc.identifier.cristin | 1762652 | |
cristin.ispublished | true | |
cristin.fulltext | original | |
cristin.fulltext | original | |
cristin.qualitycode | 2 | |